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Zika COS Project and Congenital Infections: A study to develop the Core Outcome Set (COS) for children affected by Zika's Congenital Syndrome Virus or other congenital infections.

The Zika COS study team are asking for researchers, clinicians and healthcare workers who are involved in the research or care of babies, infants and children with congenital Zika virus or congenital TORCH infections, to complete an online qualitative survey that is available at this link.

There is a brief video at the start of the survey to help explain the concepts of the study.

The participant information sheet, consent form and survey questions are available in English, Spanish and Portuguese versions. 

Please contact the Zika COS team ( if you have any questions or experience any issues with the online survey.

The Zika COS study team are really grateful for your contribution; they have worked to make the online survey as easy to complete as possible, while attempting to represent as wide a possible range of outcome measures within the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY) framework.

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